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Views from our Shoes

viewsfromshoes


Edited by Donald Meyer, Director,
Sibling Support Project
Drawings by Cary Pillo
14.95/paperback/124 pages/7" x 9"/24 line drawings
ISBN 0-933149-98-0

Description:

"I can’t imagine having a plain old sister," writes ten-year-old Ryan Clearwater. He is one of 45 siblings in Views from Our Shoes who share their experience as the brother or sister of someone with a disability. The kids whose essays are featured range in age from four to eighteen and are the siblings of youngsters with a variety of special needs including autism, cerebral palsy, developmental delays, chronic health conditions, attention deficit disorder, hydrocephalus, visual and hearing impairments, Down syndrome, Prader-Willi and Tourette's syndrome. Their personal tales introduce young siblings to others like then, perhaps for the first time, and allow them to compare experiences. A glossary of disabilities provides easy-to-understand definitions of many of the conditions covered.


Comments about Views from Our Shoes:

"Don Meyer has once again hit the sibling nail on the head. This book clearly speaks to siblings— many of whom have never met another kid with a brother or sister with special needs—letting them know they are not alone, that other kids have had similar experiences, had their worries, felt their joy, and successfully met their challenges. Parents will have much to gain by reading the essays as well. Views from Our Shoes is such a welcome addition to the growing resources and support for families with special needs. I could not recommend it any more highly."

–Debra Lobato, Ph.D., Author of Brothers, Sisters, and Special Needs: Information and Activities for Helping Young Siblings of Children with Chronic Illnesses and Developmental Disabilities and Psychologist, Clinical Associate Professor of Psychology and Human Behavior, Rhode Island Hospital, Brown University Program in Medicine

"I didn’t think that I had so much in common with other sibs like me—like getting mad at your sibling, and that other kids are embarrassed sometimes in public and around their friends. I also didn’t know that so many kids had siblings with disabilities. Sometimes I thought I was the only one in the world. I also found out that other kids feel ignored a lot, too."

--Ryan Medlen, age 11, has a brother with Down syndrome

"Although the number of books about disabled children has grown steadily, not many nonfiction books explore the feelings of a disabled child's brother or sister. These unpretentious, honest snippets, contributed by 45 children ranging in age from 4 ("My Mommy and Daddy told me that Nicole was born very early and her brain got hurt") to 18, seek to fill that gap. In talking about their sibs and their feelings, the writers admit to embarrassment ("I'm sure glad he doesn't go to my school…if they find out that he's my brother, they'd laugh"), anger, and jealousy. But at the same time, they show how protective and loving and surprisingly wise they are when it comes to getting along in a family that is different. Black-and-white sketches are scattered through the text, and a glossary of medical conditions and a helpful list of support sources are appended."

--Stephanie Zvirin, Booklist


Table of Contents and links to selections

Ben Stephenson, 4

Amber Catford-Robinson, 5

Michelle Grantin, 6

Erica Stevenson, 6

Arielle Eva Cohen, 7

Ryan Kurtz, 7

Elizabeth Alar, 7

Nick Pawelkiewicz, 8

Chris Curtland, 8

Brandon Urban, 8

Stephanie Sochia, 8

Jennifer Praino, 8

Angela Sorrem, 8

Lizzie Suwala, 9

Michelle Dodd, 9

Jessica Kolber, 9

Annelih Holganza, 9

Lorielle Fiedler, 10

Steven Meade, 10

Ryan Clearwater, 10

Justin Faulkingham, 10

Sarah Lowry, 10

Helen Rittelmeyer, 10

Chelsea Brown, 11

Matt Sochia, 11

Stephanie Hodge, 11

Crystal Marie Kirstein, 11

Alisha Axman, 11

Lauren Siber, 11

Justin Mann, 12

Jaci Raia, 12

Michelle Newman, 12

Joe Hockaday, 12

Allison Hansen, 12

Diana Lowe, 13

Jeanne Marie Pinto, 13

Justin Boraas, 13

Derek Urban, 13

Katie Suwala, 14

Anne Meade, 14

Severn Kraut, 14

Amy Pogue, 14

Joshua Kaplan, 16

Megan Patterson, 17

Kate Turnbull, 18

So What's On Your Mind?

Appendix

About the World Wide Web

Organizations serving people with special needs

Information for siblings

Glossary

Index


Ordering information:

Views from our Shoes may be purchased:

  • at bookstores (such as Barnes and Noble)

  • online from

Amazon.com
barnesandnoble.com

  • or from the publisher

Woodbine House
6510 Bells Mill Road
Bethesda, MD 20817
or call 800-843-7323
pay by VISA or MasterCard.


Links to selections:

Amber Catford-Robinson, 5

My sister's name is Naomi and my name is Amber. I am five and she is three. We think Naomi has Rett syndrome and some other things.

I like to play with Naomi. If she cries, I can make her laugh by laughing! Naomi has an electric piano. Sometimes I move her arms and help her push the keys to make music. I love to play with her. She loves me best of all.

Naomi has a g-tube. A g-tube is a tube that goes into her tummy so she can drink a special kind of formula. Naomi throws up a lot, and I don't like it when she throws up. When my parents are dealing with her, I'm alone and nobody pays attention to me. It's like I'm not even there. If she did not have this sickness, I would like it much better.

Last year I went to Camp Me and My Family and met some new friends who have sisters and brothers with special needs. We had a lot of fun! One girl had a brother who has a g-tube and was in a wheelchair and couldn't talk, just like Naomi.

If Naomi didn't have special needs, I would be much happier. Thinking of all the things we could do together fills up my brain with thoughts! We would do all sorts of things--play ball, make up games together, or play in the hot tub.

When we go to school, I sometimes like to bring Naomi into my classroom and introduce her to my classmates. Sometimes, if we are early enough, I go into her classroom and see her classmates.

I worry about Naomi sometimes. When she is in school I wonder what she is doing and if she is having a good day. When I get home from school, I can't wait to see the art she did at school.

On weekends I like friends to come over to play and meet Naomi.

I wish she will get better sometime in her life. But I do not wish she will get better in days, weeks, months, or years. I just wish she would get better the minute I wish it.

Amber, who loves to dance, swim, swing, rollerskate, and read, lives in Forestville, California.

Lizzie Suwala, 9

When I was in Mrs. Callas's fourth grade room, we had to write about a special person in our life. Of course, I picked my brother Jason, who is blind, deaf, and mentally retarded. When my teacher chose the top five essays, mine was one of them. Here are some of the things I wrote in my story:

Jason is special to me because he has a disability and is different from other people. Since he's been born he has not been able to see, hear, walk, or talk. I know he is a gifted person, because he got communion when he was 18 years old, and he received it on my sister's birthday.

I watch Jason when my mom is doing things around the house. I hold him on my lap and hug him because he is so little. Sometimes I give him his Prosobee drink after supper. I taught Jason to drink by himself. I don't like it when he pulls my hair, but he doesn't understand.

I also don't like it when people stare at Jason in the store--especially older kids who should know better. (I still think my brother is handsome!) Another thing I don't like is that we can't go on vacations except when Jason goes to summer school. Also, we can't go out to eat because he can only eat certain foods.

My friends aren't a problem, and I am not embarrassed by Jason. My mom took Jason to my class on the last day of school. My teacher wanted to meet him and the kids thought he was cute. I felt happy and proud of him because he didn't cry at all. I like when he goes to church with us because he isn't any problem, except for his noise-making and crying.

I think Jason has helped my sister and I like each other better. Jason is a great brother, and life would be hard to imagine without him. I feel bad for him sometimes because his girlfriend, Michelle, died. They always held hands in class. I wish someday he would be normal like me so I could see what he would be like.

Lizzie lives in Ford City, Pennsylvania and likes basketball and softball.

Ryan Clearwater, 10

ryan

My name is Ryan Clearwater. I am 10 years old. My sister Lindsey, is 13 years old. She has mental retardation. I would like to share some thoughts I have with you for your book.

Lindsey comes to Shepard school with me and I feel O.K. about that. She sometimes is in a regular class and other times is in a special class. I don’t feel O.K. when people make fun of Lindsey. It makes me mad and sad at the same time. My good friends understand.

One good time I remember is when I had to read a book to Lindsey at school to make her feel better because someone hurt her feelings on purpose. Reading the book to her calmed her down and I felt good that she was O.K. and safe. I think having a sister with disabilities has made me a more caring and sensitive person.

Lindsey is my only sibling. It is hard to put into words what having a sister with special needs is like, but I can’t imagine having a plain old sister. Sometimes I wish she wasn’t handicapped--but she is and I can’t change that or cure her.

I like to hear Lindsey laugh. I don’t like it when Lindsey cries or gets in trouble. Sometimes I’m scared for Lindsey because I can’t predict what she will do next. She's in her own little world. Lindsey is a "free spirit" and likes to wander around our neighborhood. We have a fence around my house to keep her safe.

Sometimes I’m jealous of Lindsey. When I ignore my parent’s directions, I always get privileges taken away. When Lins ignores them, she doesn’t always get punished because she is still learning right from wrong.

When I grow up I want to be involved in sports. When Lindsey grows up I want her to have a job that she enjoys.

Ryan, who likes cards, video games, coin collecting, and sports, lives in Columbia, Missouri.


Anne Meade, 14

wheelchairHello, my name is Anne Meade and I have a twelve-year-old brother named Michael. He has cerebral palsy. Some people may think having a brother with a disability is fun but it's not all fun and games! Oh, sure, it's great when I can yell at him and he can't yell back or when my family waits in line at a historical place and we get to go to the front of the line to use the elevator.

But there are some bad things, too. Like when he can't tell me what's wrong, or when people stare at him, or when he doesn't understand when we want him to do something.

Life is sometimes frustrating for the whole family. Sometimes I wonder what my brother is thinking. When he yells, is it a cry of pain or anger or maybe even joy? I get jealous sometimes--I think everybody with a disabled sibling does. So much money is spent on his equipment, but when I want something, I have to use my own baby-sitting money. I understand why he can't buy his own things but it still makes me mad.

I lead a pretty regular life. All my friends love my brother. If I was friends with somebody who didn't like him, I don't know if I would be friends with them anymore. When I baby-sit my brother, sure I may have to change a diaper or two but it's really easy. Usually, innocent little me, I take over the TV but when his crying becomes intolerable, I usually change the channel.

To end this, I just want to tell all people, young and old, please resist the urge to stare at people who have disabilities. I do sometimes but after a while, I regret it. And don't take pity on my family! We are normal! Just because my brother has cerebral palsy doesn't mean we are aliens or anything! We have feelings, a brain, and a heart just like every other person in this world. So does my brother!

Anne lives in Sanford, Maine, where she likes to ride horses and hang out with her friends.

Excerpts from Views from our Shoes copyright, 1997, Donald Meyer. All rights reserved.


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