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Plans & Accomplishments

Here’s what the Sibling Support Project has done in the past year with just one full-time employee. Your donation will support this work!

  • Hosted SibKids and SibNet, listservs providing a daily forum of support and information for over 1500 young and adult siblings worldwide;
  • Conducted 37 days of workshops throughout the US--and in Japan, Guatemala, and Ireland-- for parents and service providers on brothers’ and sisters’ unique issues;
  • Provided ongoing technical assistance to 400 Sibshops which serve thousands of young brothers and sisters in eight countries;
  • Conducted on-site trainings on the Sibshop model, resulting in the creation of 25 new Sibshops in the United States;
  • Consulted with hundreds of parents and service providers interested in addressing sibs’ life-long concerns;
  • Collaborated with colleagues from the University of Illinois at Chicago’s RRTC on Aging with Intellectual and Developmental Disabilities to develop an online survey and curricula for adult siblings who are assuming care for their brothers and sisters;
  • Collaborated with University of Washington colleagues to investigate the impact of Sibshops;
  • Published The Sibling Slam Book: What it is really like to have a brother or sister with special needs (Woodbine House, 2005), the first book written especially for teen sibs, featuring the contributions of 80 brothers and sisters;
  • Provided articles on sibling issues to publications of the Tennessee's Early Intervention System, Attachment and Bonding Center of Ohio, Parent to Parent of Georgia, the Autism Society of America, FAS Times, the NeuroDevelopmental Treatment Association, the Texas Deafblind Project and others;
  • Been featured on ABC News’ 20/20, Nightline and World News Tonight and in Newsweek, The New York Times, Newsday, The Washington Times, The British Journal of Special Education, The South Florida Sun-Sentinel, Fort Wayne News, Indianapolis Star, The St. Louis Post-Dispatch, The Memphis Commercial Appeal, The Deseret Morning News, The Tacoma News-Tribune and The Akron Journal Beacon among others.

But there are 6.5 million brothers and sisters of all ages! Much work remains to be done. Here are just a few more things we can do with your support.

  • Collaborate with Sibshop facilitators to create Sibshop, Jr., a new model specifically for 4-7 year old siblings of children with special health and developmental needs--and provide training on this model;
  • Create and moderate discussions on SibParent, a listserv for parents regarding their typically developing children;
  • Create and moderate discussions on SibTeen, a listserv specifically for sibs ages 13-18;
  • Collaborate with Sibshop providers and the SibTeen listserv community to create and field test a peer support and education program for teenage siblings;
  • Invite guest speakers to SibTeen, SibNet, and SibParent to discuss topics identified by members;
  • With permission, post notable advice and observations shared on SibParent, SibTeen, and SibNet on the Project’s website;
  • Conduct workshops specifically for adult siblings at state, regional, and national conferences; and
  • Work with Woodbine House to create a book that provides adult siblings with information they will need to be effective advocates for their brothers and sisters who have disabilities.

A final word from Raphielle Chynoweth, sister, SibNet member and Sibshop facilitator:

I grew up with two sisters who have developmental disabilities.

When I was 13, my parents wanted me to work at the camp my sisters attended. They thought that by meeting people with disabilities more severe than my sisters, I would realize how fortunate I was.

It didn’t work.

However, since discovering the Sibling Support Project, I’ve made connections with hundreds of other siblings from around the world. And I’ve learned what my parents wanted me to understand at 13! It’s helped me look at my family and my situation in a broader context.

The Sibling Support Project has helped me strengthen my relationship – a beautiful relationship – with my sisters Anne and Donna. Today, I value that relationship in more ways than words can possibly describe.

As an adult sib, I realize I will soon be largely responsible for my sisters’ care. Because I have found the Sibling Support Project, I am not only better informed, but more emotionally prepared to take on this role.

Will you help other sibs get the support and information that has been so vital to me and my family? Please join me in supporting the critical work of the Sibling Support Project. You can easily do this by clicking here!



Sister to Anne and Donna

PS--The Sibling Support Project has also helped me to help other sibs! For the past five years, I’ve facilitated Sibshops here in Puyallup, Washington. Our Sibshop was the Sibshop featured on ABC News' 20/20 program!

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